Stroke Awareness and Recovery
— written by Club Fit Member and Guest Blogger Joy Cain
Club Fit’s Syd Berman shares her experience to promote stroke awareness.
The morning of June 6, 2012 was like any other beautiful spring morning at Club Fit. Swim classes were going on in the program pool, treadmills and stair climbers were being used in the fitness area, and up in Studio I, Syd Berman was leading her Dance ‘n’ Funk class, just as she had done hundreds of times before. But about 15 minutes into this particular class, things went awry. And Syd Berman’s life was changed forever.
“I didn’t feel anything,” Syd responds when asked if she felt pain. “I was just teaching a dance, and I thought, ‘Wait a minute. I’m an instructor, and it’s almost like I’m stumbling.’ Then I said something over the microphone and two of my students recognized what was going on and stopped the class.”
What was going on was that Syd was having a stroke. The alert students who saw Syd’s unusual stance and heard her slurred speech reacted immediately. They notified the front desk, and 911 was called. Syd was whisked off by ambulance to Hudson Valley Hospital. A day later, she was transferred down to Columbia Presbyterian, where she remained in the ICU for a few days. When doctors determined that she wasn’t in imminent danger of having another stroke, Syd was transferred to Burke Rehabilitation Center in White Plains for what turned into a six-week stay.
For those in the Club Fit family, the overwhelming sentiment surrounding the entire episode was one of shock and incredulity. This wasn’t some weekend warrior, some wannabe jock who suffered the stroke — this was SYD! Syd… who had begun working here when the facility was known as the Jefferson Valley Racquet Club. Syd… who, since 1993, had been the Club’s dance coordinator and was later put in charge of all the group exercise programs. Syd… who ate all the right foods and slept the right number of hours and who, at the age of 59, was in better physical shape than most women half her age. The stroke had happened to Syd! And the underlying thought was this: If a stroke can happen to someone like Syd, what chance do the rest of us have?
“I had none of the precursors,” Syd says. “I’m just happy I was here when it happened because our emergency response was excellent.” What Syd had was an ischemic stroke, which means that a blood clot interfered with the flow of blood to her brain. Doctors told her that the clot probably formed after she made a sudden movement with her head. “When I do the warm up, I get very high energy, so I might have just twisted too hard or something,” she says. “My doctor told me that was it. I said, ‘Well why hasn’t Beyonce stroked out ?’ and he said it’s just the luck of the draw. My GP told me that sh*t happens — so I said, ‘Thanks a lot — that really helps me out.’ But you know what? I’m still here and I feel very lucky because everyone has a story. Everybody has a tragedy in their life and I’m lucky I survived, because stroke is the No 4 killer in the country.”
Syd is speaking from the bridge area overlooking the pool at Jefferson Valley, waiting for a chair yoga class to begin. She has gained weight in the three years since her stroke, which is to be expected given that she is so much less mobile than she used to be. She needs a cane to get around, and her left arm is virtually useless. But her speech is back to normal and the smile on her face is real. She’s wearing a black Club Fit shirt with the words Live, Laugh, Love on it, and around her neck is a rhinestone turtle, a gift someone sent to her when she was rehabbing at Burke. The turtle is her reminder that recovery from stroke is a slow process — but the idea is to keep moving forward.
When she arrived at Burke, Syd had absolutely no movement in her left arm or her left toes, and her left leg felt like it was in a bucket of cement. The left side of her face drooped slightly. She was riding on an emotional roller coaster, going from a place of initially joking about her predicament in the hospital (“little did I realize the joke was on me,”) to a place of feeling no emotions at all. It wasn’t until some instructors from Club Fit sent 100 red roses to her room at Burke that Syd finally broke down and cried.
She knew that she would do whatever she could to restore her health.“Any testing they had at Burke, I volunteered for it,” she says. “Electrical stimuli (I felt like Frankenstein), a low carb diet that was supposed to help the brain — I was game to try anything I could.“ She went to physical therapy three times a week and eventually made such amazing progress that, in 2014, she was asked to return to Burke to share her story at a clinical conference.
Which brings us to today.
“I’m good. It’s a struggle everyday to live with a disability — boy, do I have appreciation now for people that have disabilities! — but I get along. I still have a good arm, a good leg, and my husband (Howie) is so good at taking care of me!
“I can do pretty much everything myself — except I can’t cook on the stove because that’s dangerous. I’m left-handed, so I try to write, but I can’t write too well — I sort of scribble with my right hand.
“I feel very lucky. I get to take care of my grandkids, I see my friends, I get out and about. I joined a singing group — we’recalled the Sweet Seasons — and we have such a good time! Everything I read says that the more you do for your brain, even without a stroke, the better it is for you.”With that in mind, Syd tries to keep mentally busy. One of her goals is to learn Spanish. Also, Syd recently took the written test to recertify herself as a group instructor; perhaps one day she’ll be able to lead a fitness class for those with special needs.
Still, she fatigues easily. An occupational therapist regularly visits Syd at home, and, among other things, makes Syd get down on her hands and knees to try and do push ups. That, along with trying to lift her left arm by itself, are two of her most challenging physical tasks. Although doctors have told her that her disabilities are permanent, Syd refuses to accept that. “I’m not gonna stop working,” she says. “I’m never gonna give up hope.”
Life has a way of teaching us everything we need to know. Prior to the stroke, Syd says that she was super critical of her looks. “I was very self conscious and didn’t think I was good enough. Now, of course, I look at pictures and say, wow, I was pretty good,” she says. The lesson here? “Appreciate your body — no matter how big it is, how thin it is. Embrace yourself — don’t let society tell you that you have to be perfect. Embrace yourself and just make the best out of it.
“A lot of people just don’t want to go out when they’re like this [with physical challenges] — but you know what? I’m here and I’m gonna live my life the best I can.”
She’s also doing what she can to make a difference. Syd’s proud of the fact that Club Fit partnered with her to raise funds for the National Stroke Association (NSA). Among other things, the NSA seeks to educate people about strokes, help stroke victims receive extended therapy, and advise hospitals on how to become better equipped to deal with stroke victims. In May, this Club Fit fundraiser was held in conjunction with the So You Think You Can Choreograph contest and raised over $4,000 for the NSA. Last year’s fundraiser raised over $3,500.
Syd is also proud of the fact that so many of the women she taught in Dance ‘N’ Funk contributed in some way to the fundraiser, and that they are still there for her — and for each other. Says Syd: “The dance girls are unbelievable. It makes me so happy to see them bonding and being friends.”
More than 30 years have passed since Syd Berman and Club Fit first crossed paths, a path that has seen its share of twists and turns. And as Syd looks back over what’s transpired these last three years, some more of life’s lessons are revealed.
“Family is more important than anything — and keeping your spirits up, no matter what happens, is important.,” Syd says. “I’ve discovered that I have so many wonderful friends at the club, it’s like my second home. And I also discovered that I am strong. I used to wonder what would I do if something happened [to me],